Done!

My Pook is a girl of strong convictions. She does nothing by halves and feels nothing mildly. If she’s happy, you know. If she’s unhappy, you REALLY know.

Today was our quarterly cancer screening, which is part of the protocol for Beckwith-Wiedemann Syndrome. BWS causes the body to grow unevenly, which can cause a variety of issues but frequently causes cancerous tumors on the liver or kidneys. BWS kids receive abdominal ultrasound and bloodwork every three months to detect these growths as early as possible. About 11,000 kids are born each year with BWS and 1 in 8 will develop cancer.

So, yeah. That’s super fun, right? And ultrasounds are painless, but she can’t eat for three hours prior and she’s gotta lie still for a half hour and then they poke for blood. Try explaining all that to a two year old. Better yet, explain it to 2 two year olds because you know I can’t feed Boogie if his sissy can’t eat. Freaking A.

Pook was not the least bit impressed with today’s proceedings. The radiology department at the hospital was 45 minutes behind. She fought and bit and kicked me and it took three times as long as normal because she was too mad to hold still. No, she didn’t want an iPad – she wanted food! They had to poke her twice to get enough blood. For almost three hours solid, she glared at me with her eyes full of tears and shouted, “Done!” in her most emphatic voice.

Me too, babygirl. ME TOO. So very, very done.

A whole host of other things went off the rails today and I ended up on the phone with doctors and fixing issues until almost 4pm. I did not feel even a little guilty ordering delivery for dinner, nor about lying down at 6:30pm. But now it’s after ten and I’m staring at the ceiling, trying not to envision my sweet girl with cancer in her belly or losing her hair to chemo. I believe at the very core of my being that Pook is under divine oversight. I just wish I could be equally as positive that oversight meant she will stay healthy. We should get results on Monday and I’ve never wished a weekend away so fervently. Ugh.

Do me a favor and find someone to hug today. I could certainly use one. And, if things get you down, channel your Inner Pook, look ‘em right in the eyes and shout, “Done!” Bonus points if you also manage to smack them over the head with an iPad.